| | Joined: Sep 2009 Posts: 7 Member | OP  Member
Joined: Sep 2009 Posts: 7 | I'm looking for any patients or survivors who can speak Russian. My friend doesn't speak English and she would like to find here somebody who she can speak about tongue cancer treatment. Now she is doing radiation treatment after surgery. Thank you! | | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Lena,
In case there is nobody on the forum that speaks Russian, perhaps you could post her questions and concerns here for her. It might be a little tedious, but at least she can get some good answers.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | My brothers GF is Russian...Maybe I can get her to join...I don't know what kind of time she has on her hands and you all know how kids are when something doesn't affect them personally...
I will ask but can't promise anything
Last edited by Ray1971; 09-08-2009 05:05 PM.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Jerry, your answer was good common sense. LOL I wonder why she isn't posting for her friend. They must understand each other.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 |
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | | Joined: Sep 2009 Posts: 7 Member | | OP Member
Joined: Sep 2009 Posts: 7 | Jerry, thank you!
I did post my friend's questions on another page "What is the best way to learn how to eat?" and here they are:
Every time when she drinks water after swallowing little part of water is staying in mouth and she cannot swallow it and she has to just spit it up.
Why is it?
Is it better to learn how to eat by mouth when tubes are still going from nose to the stomach and then remove the tubes?
Is it OK to have the tongue sideways to eat by mouth?
Is the tongue changed and become more flat and flexible, increased size after years?
What kind tubes are better to have? What kind materials it was made of and diameter? How often do you change your tubes? Can it cost any problems with his stomach, gullet, thought, bedsores, infection? Is it dangerous to use tubes for a long time?
I already had a great respond from lady, who is native Russian and also it can be nice if I will have help from more people. Thank you! Lena | | | | | Joined: Sep 2009 Posts: 7 Member | | OP Member
Joined: Sep 2009 Posts: 7 | Thank you Ray! It can be nice if you can help! I also post my friend's questions on another page "What is the best way to learn how to eat?" in English. Please, look at them:
She is 34 years old, had a very serious surgery on her tongue 2/3 of her tongue was removed) and now she is going through radiation treatment. Here are her questions :
Every time when she drinks water after swallowing little part of water is staying in mouth and she cannot swallow it and she has to just spit it up.
Why is it?
Is it better to learn how to eat by mouth when tubes are still going from nose to the stomach and then remove the tubes?
Is it OK to have the tongue sideways to eat by mouth?
Is the tongue changed and become more flat and flexible, increased size after years?
What kind tubes are better to have? What kind materials it was made of and diameter? How often do you change your tubes? Can it cost any problems with his stomach, gullet, thought, bedsores, infection? Is it dangerous to use tubes for a long time?
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I am down to the center of my tongue , but the Dr says it's the muscle standing by itself. It helps tho.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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