| Joined: May 2009 Posts: 72 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2009 Posts: 72 | Hi everybody, This is Jeff's wife reporting back. Jeff finally finished all 33 radiations and three chemos. The chemo seemed to be the really hard part for him. He is still out of it 6 days after chemo but starting show some life today. He has been able to swallow fine up to this week. He has many mouth sores and pretty heavy pain meds. The nausea even with meds is bad and so during each chemo he loses 5 lbs or more but in between chemo treaments he was able to put the weight back on. So he is down 20 lbs from the start. He has a PEG which has been so great for hydrating him all night. We just keep the liquids flowing. Mostly Gatorade at night. He can't tolerate too many of the high calorie drinks. So now... since he did so well they want him to do three more Cisplain chemos one month apart. So treatment isn't over but at least the radiation is done! Can't say we are looking forward to the Cisplatin but we will do whatever it takes to get rid of the cancer. So we are kind of celebrating part one finished..or least I am. He is to sick still to stay awake long enough to be happy about being done with radiation.
Jeff age 49 DX 5/8/09 Tonsil cancer T2N2BMO. Tonsillectomy 5/14/09. TX: Cisplatin 3x's every 21 days w/ 33 Rad concurrent. 2-3 nodes on right neck affected. PEG 7/10/09. Chemo/rad start 6/12/9, TX finished 7/28/09. Extended TX 3 more chemo/Cisplatin/5FU/Docetaxil start 9/11, Clean PET 10/29/09.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | That's great.
Re your comment on more chemos....sometimes I don't think they are happy unless they really punish us. lol
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2009 Posts: 72 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2009 Posts: 72 | David,
Have you heard of others getting an extra 3 chemos after the standard treatment? And were they cisplatin? Cisplatin seems so toxic and I worry about the side effects of three more chemos with that drug. Just wondering. Of course he will have his hearing tested and the appropriate blood tests. Vanessa
Jeff age 49 DX 5/8/09 Tonsil cancer T2N2BMO. Tonsillectomy 5/14/09. TX: Cisplatin 3x's every 21 days w/ 33 Rad concurrent. 2-3 nodes on right neck affected. PEG 7/10/09. Chemo/rad start 6/12/9, TX finished 7/28/09. Extended TX 3 more chemo/Cisplatin/5FU/Docetaxil start 9/11, Clean PET 10/29/09.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Just what do you mean by 3 chemos? Didn't they give him chemo once a week during rads? Every Tuesday was my chemo day and rads daily.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Vanessa,
Not sure I understand what your Signature means...Chemo (Cisplatin) 2 rounds 3x's every three weeks.
I had 3 bags of Cisplatin, 1 every 3 weeks. Some have gotten a smaller bag each week for 6 weeks so which did Jeff get?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2009 Posts: 72 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2009 Posts: 72 | Jeff got 3 bags of Cisplatin every 3 weeks with radiation. Now he will get 3 more bags of Cisplatin a month a part and no radiation.
Jeff age 49 DX 5/8/09 Tonsil cancer T2N2BMO. Tonsillectomy 5/14/09. TX: Cisplatin 3x's every 21 days w/ 33 Rad concurrent. 2-3 nodes on right neck affected. PEG 7/10/09. Chemo/rad start 6/12/9, TX finished 7/28/09. Extended TX 3 more chemo/Cisplatin/5FU/Docetaxil start 9/11, Clean PET 10/29/09.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | No I haven't heard of anyone getting that Tx of Cisplatin.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2009 Posts: 72 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2009 Posts: 72 | I haven't heard of anyone getting that tX either. I will follow through with more questions to the doctor. Thanks David.
Vanessa
Jeff age 49 DX 5/8/09 Tonsil cancer T2N2BMO. Tonsillectomy 5/14/09. TX: Cisplatin 3x's every 21 days w/ 33 Rad concurrent. 2-3 nodes on right neck affected. PEG 7/10/09. Chemo/rad start 6/12/9, TX finished 7/28/09. Extended TX 3 more chemo/Cisplatin/5FU/Docetaxil start 9/11, Clean PET 10/29/09.
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