I was told that the initial mask fitting was the longest or toughest part of getting used to the mask. I had my mask made a couple days ago and it was very trying to say the least. It was nothing like having to put on a gas mask in Iraq, much worst. Ironically, both masks were both there to help save my life. I didn't think to look through the forums for information before hand.
Maybe, someone could hold a mask fitting training class. After all, knowing is half the battle right.
The worst part for me was the tube that I have to have in my mouth to hold my tongue in place. Anyone else have this? Makes my throat and mouth really dry. And yes I did the deep breathing through my nose as best I could.
Dx: SCC lateral tongue April 09, Stage T1M0N0 PET scan clear April 09 Partial glossectomy April 09, no carcinoma present IMRT started 7/9/09, finished 8/26/09 PEG inserted 7/30/09 PEG removed 9/25/09 ER Nurse
Keep the rubber side down....
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