I have yet to see a compelling argument against having a PEG tube! As far as I can tell, there just isn't one. If you have it and you need it, its there. If you have it and you don't end up needing, you don't have to use it.

I had one, needed it, hardly lost any weight during treatment and didn't have any trouble with staying hydrated or taking meds. I continued sipping water as well as I could during treatment, despite it tasting awful (!) and when my mouth and throat were ready, I switched back over to eating. I admit, that part was hard, and I did lose weight during that transition, but I honestly don't understand what the whole anti-PEG kerfluffle is about.


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018