 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | This a consult you need to have with your RO. He/she may have "rules" that they go by as in they will not stop radiation to insert the PEG, etc. I didn't want the PEG at all costs (and risks which I couldn't imagine at the time) and I lost 30% of my body weight that I couldn't afford since I was ideal weight going into Tx. I did survive despite myself but I probably made it worse by being so stubborn but hey maybe that's what also helped me get thru it (being stubborn). One thing I do wish I had gotten was a Port.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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