 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Mine is more like an electric shock that travels from the neck down the spine. It feels like you are literally stretching your spinal cord with a strange sensation and sometimes tingling in the hands and feet at the same time.
Too bad I can't find "Sabrina's butt dance". She posted on here years ago and she met someone from the board for lunch and as they were sharing treatment and "issues" stories, she was sort of showing how to bring on the sensation and to read her account I could imagine this fiesty Hispanic/Latino girl doing the chicken dance through a restaurant and two women bursting out in laughter as they compared notes and sensations.
I guess you had to be there or at least read it first hand.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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