HI,
I had SSC 7 years ago, tongue resection, neck nodes removed(2nd layer positive) and 42 radiation treatments. Mouth care is essential. I go routinely every 2 months and have many fillings at the gumline and many caps because my teeth are deteriorating. My dentist who has been very good has finally said I need a specialist because my gums are turning into mush. My rad MD suggested a prostodontist at Sloan in NYC. My insurance is giving me a hard time since he is not on my plan?? I called 2 oral surgeons that Cigna recommended and they dont have a clue about post radiation effects. I have been able to keep my teeth so far with water pik, sonic care tooth brush and flouride. If some of you are very sensitive brushing , I found brushing in the shower was the best.(shower saliva) and definately get a water pik! If anyone knows a dental oncologist in NJ let me know. I have an appt with Dr.H at MSKCC in 2 weeks for a consult. (Hopefully insurance will cover)Maria