Cindy/ Amy: Thanks so much for the additional input. I have started playing hardball. I'm no longer asking whether he's done something, or asking first before I do it, I'm just doing it and telling him about it afterwards. Won't go into details but as of this morning it looks like his MDAnderson caseworker is requesting his evaluations begin next week. Of course I wish it were today but, considering we weren't even close at the beginning of the week, next week isn't that far away.

Thanks Bryan Hill, who suggested I post here, as well as to everyone else who's responded & helped to empower me. Thanks also to the American Cancer Society for recommending I contact the Patient Advocate Foundation (who I'm still working w/to move things along).

I'm sure you'll see more of my posts as things progress. I know there's a long battle ahead.
Thanks again,
Rebecca