My big problem is not so much pain, but nausea, dizziness and that everyone feels that it's someone else who should help me.

RO says I don't need an MO and asks me to see the Surgeon.

Surgeon is not available so I see her PA who prescribes a coupla things (which don't work) and says that the RO could prescribe it also.

She does not know which MO would be appropriate so she'll send an email to the surgeon who will call the MO, whose office will call me to set up an appointment. While I feel I need to see someone now, their attitude is: there is no rush; he can suffer a few more weeks.

This stuff with email and calls from the office took months once in the past with a different referral. I still have not seen the doc for that referral.

I called a patient advocate and may call the social worker to see if they can facilitate communication.


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07