 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Lorie,
I am trying to catch up after a bit of absence from the neighborhood and I am truly sorry to hear the news of Don and you. I am at a loss for words and I can't even imagine what you have been going through the past several months.
Susan and I still talk often about Las Vegas, too. It was a very special time for us in many ways.
Last night I was looking over my son's graduation announcements and the inside flap had the wording we all pass around in some form of another. I would like to share it:
"Dance like no one is watching; sing like no one is listening; work like you don't need the money; love like you've never been hurt; live like today is your last."
Even in your toughest battles in this horrible war you are fighting I am praying for His comfort and peace for you and Don and that your hearts will always be filled with love.
With love,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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