 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I had Cisplatin all day on Tuesday then they hooked up a "to-go" bag of 5FU and I went to the hospital on Sunday to take some blood and remove the 5FU. I was supposed to do this 3 times at 3 week intervals but my counts were too bad the last round and they only gave me the Cisplatin. I am one of the "minority" in that I think I even puked up the bottom of my feet I was digging so deep to find something to puke. I tried every anti-emetic on the market and a couple of experimental ones but I puked right after radiation (about 30 minutes) and often the 3-5 day of the 5FU. My wife joked alot about the FU part of it being very descriptive. I had a little over 9 weeks of radiation starting the week of the first round of chemo. I have been cancer free for about 7 months now with no signs about the 5th week of treatment.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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