Miss Vicki, sorry to hear of your difficulties. The only help I can offer is that I read a post earlier that talked about some therapies that had been successful for someone on the board that had had their tongue removed. I'm sorry I don't remember where it was, but I remember reading it in the last couple of weeks. You might try a search. It was a response to a request for advise on having the tongue removal surgery by another member of this board. You know you are in my prayers.