Wow! What a story! My heart goes out to you. I hope that Hopkins can offer you something that improves your situation. This is a beast of a disease, for sure. Your story is disturbing, to say the least. I was treated at a university medical center at which I received excellent treatment, though I wished that I had gone to MDA, just for my peace of mind. Maybe I am fortunate that things worked out the way they did. Please keep us posted on your progress.