He set up permission for me to speak to his MD Anderson Business Consultant. Wonder if I could route the questions through her. Might be work a try.

Something else I wanted to include (but was to late to edit) in my original post. . . .

We've not even received formal TNM info. The head surgeon did inform us he was stage IV but I was only able to pick up informal TN info as radiologists talked amonst themselves during consult (informal in that they bantered around like shop talk the patient & family would not be expected to understand, therefore pick up on). M value was never discussed in any of the consults.

Thanks,
R-