 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jackie:
Im sorry for you and your family to be going thru this. Its very difficult, I know Im going thru it also. You will need a notebook and I take every doctor's card and staple it to the inside cover of the notebook. You will also need a calander to write down doctor appointments. I have 7 doctors and also my family physician. Kind of hard to keep them all straight w/ out the calander and business cards. There will be alot of appointments and tests done to see what stage she is. This will be determined thru the PET scan. She will also have an MRI, CAT, scan blood work, she will to see a dentist too, even with her dentures, he will make sure of the fittings. Ask your dentist for magic mouthwash, it will bring her great comfort. Its 30% each of benadryl, lidocaine, and malox. Your mother is very lucky you are there to help her. I wish you both the very best of luck.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
