 "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | Hi Zoe
What Margaret said "When you are meeting with doctors' take notes...lots of them. Ask questions when you are confused."
We took a small tape recorder in with us so we could record what we were being told by both the doctors and the nurses. They tend to throw a lot of stuff at you and it was VERY helpful to be able to go back and review.
Don't be afraid of the PEG, it turned out to be one of the best things I did.
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | 
