Christine,

Thank you for your quick response. I greatly appreciate it.

I'm not sure what SLP stands for. I have been swallowing every day - the large amount of mucus that I have I need to swallow it continually (does that count?). Prior to having the brachytherapy (Feb 2018) and after having surgery (Apr 2016), radiation and chemotherapy (July 2016) and immunotherapy (2017) I was able to swallow food. I had more of a problem with manipulating the food in my mouth due to the constraints of my tongue. I was hoping to find out what others have done to "re-train" their tongue (or what's left of it) to maneuver/manipulate food in their mouth and what has worked for them.

Also, I'm curious as to your signature (after).....can you tell me what "HBO dives", "trismus" and "mandiblctmy" means?

Susan


Susan
04.12.16 1st surgery; rt partial glossectomy; neck dissection; 2/38 lymph nodes positive
05.12.16 Resected T2, N2b, M0
05.24.16 Rad, Cisplatin
10.03.16 Clear PET
04.11.17 Clear PET
06.09.17 1st recur
06.21.17 2nd Surg: rt partial glossectomy; forearm free flap; rt thigh skin graft
11.09.17 2nd recur
11.30.17 Nivolumab
02.06-16.18 Brachytherapy
06.12.18 3rd recur
06.12.18 Lt axillary lymph node SCC
07.05.18 Pain pump placd
08.23.18 Pump removd
10.29.18 PET-CT responds to treatmnt