I’m SO glad I came across this site! I was first diagnosed on April 1, 2016 and have had 2 reoccurrences leading up to today (Oct 22, 2018). I had surgery to remove about one half of my tongue, radiation, chemotherapy, immunotherapy and brachytherapy. My MO tells me the immunotherapy is not working but I’ve asked her to please continue it alongside the chemotherapy. I chose to have brachytherapy at another hospital since my current facility did not offer it. My brachytherapy doctors feel they have gotten all the cancer but my current facility doctors will not agree and, without doing another PET Scan, say the cancer is still there. Regardless, I have had the GI feeding tube since the brachytherapy was performed this past Feb. I don’t think it’s so much of not having the ability to swallow as it is not being able to have my tongue manuever anything put in my mouth to the back of my throat where I can swallow it. If anyone has used the “shaker” exercises do you think they will work for me?

Any help is appreciated,

Susan