 Platinum Member (300+ posts)
Joined: Jun 2013 Posts: 346 Likes: 3 | This is where you hunt second opinions again. Why aren't you a surgical candidate? Do other doctors have other takes on that? Worth asking. Makes sense that you can't do radiation right all over again, but the surgery ... clearly they know more than we do here, but worth asking around. I was always under the impression they could keep taking, and taking, and taking.
Thank goodness you were on top of this! ((hugs)) We're here for you, and rooting for you.
Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
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