Hello,
I am a FULL TIME trachy...ughh If I only knew back then what I know now....Tink22...I'm not a DR. but heres my scoop. I came out of treatments and neck dissection with NO trach....then about a year later, I was having difficulty breathing. When I climbed stairs I would have to stop and take a breath. So my journey began to check out the reasons and if it was my lungs etc...everything was fine. I did all sorts of MRI and tests and the only thing my ENT said was my esophagus was narrowing from the rads. OK but I was still very active...then BAMMM one night a mucus plug had gotten stuck in my airway. I LOST my breath and passed out. My husband did CPR and called 911. Finally, my ENT suggested the TRAKE to play it safe. I was under the impression it was a temporary situation bcuz the plan was to do a DIOLATION to stretch out the esophagus. In my heart and mind I still felt it was temporary. Little did I know your body begins to depend on the TRAKE... I am C-FREE for which I am very grateful for but I feel had I known a little bit more, maybe I wouldn't be dependent on all this stuff. I don't mean to sound ungrateful. I just wish I had better guidance.....Not sure if this helps you. My intention is to saY 1 THING...EDUCATE YOUR SELF. DID I READ THAT YOU ARE A NURSE.? if yes, then I'm sure you know the drill. GOOD luck I hope everything goes great for you.


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