 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Awwww! I feel so bad for you both!!!!
If your husband doesnt have the feeding pump to use while he sleeps maybe that could help? I completely understand why he says he cant. I had the same problems like he did. I would sleep instead of doing feedings as I didnt have a caregiver. Your husband is very fortunate to have you.
You're right... all you can do is take it day by day. Hope tomorrow is better for you both.
PS... Im sorry you had problems posting your reply. I havent been aware of any tech issues after our recent website upgrade. Please let me know if you have any further problems.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
