hello dear friends-
ah, two RADS left.. chemo is done.
We have made it this far but not without, as many of you already know too well and understand so many challenges.

Right now... can anyone offer suggestions on Pain management ( fully understanding that everyone is unique and tolerance as much so too).
He has significant ear and radiated pain up onto his head now since the RAD boosts began last Friday.
He is on fentanyl patch 25 mcg, with liquid Oxycodone for breakthrough, as well as Tylenol solution and now liquid naproxyn sodium ( aleve)... he needs something every 4 hours for breakthrough. Bringing up the thick, ropy phlegm triggers all sorts of pain from the throat/tongue ( mucositis) and now this ear pain.

he uses ice packs to his ear/head with some relief too.
Goodness, it is so hard to watch one you love in pain... and it seems there is little more to offer.

I am wondering about the next dose of fentanyl but that has risks,

also.. any thought on when to reconnect with SLP now that we are two RADS out from finish?

sometimes this feels so inhumane.... trying to destroy a cancer while almost destroying the man.

thank you for letting me vent a bit.... and if you have any experience with pain management?
thank you !!


MrsW
Wife, RN and CG to husband 55 yo diagnosed with tonsillar /lymph nodes SCC HPV+ 11/9/16- PEG and Power Port 12/9/16. Treatment started 12/27 Cisplatin x7 and RAD x35 on 12/28/16. Trismus had gotten worse!