thanks BJMPittsburgh.
with the change in hydration ( additional day) this allows us to focus on the calories more.

we have made a few changes and those seem to be helping.

his stomach ,, intake are the greatest challenges along with his frustration and worry about trismus.
his openining has decreased and he is extremely discouraged, (understandably) he keeps saying he can't live with a PEG the rest of his life, he won't do this if he has to etc.

I wish there was more research and therapeutic advances. I keep reading PUBMED but don't see much. I find it so hard to believe there have not been surgical advances for severe Trismus. He was doing his exercises but those have become harder and swallowing is getting a bit more difficult too. He says his tongue just feels so weird, fat and incapable.

anyway... just sharing. I will have to do more research and reading on this.
... thank you for your support and encouragement!!! truly it is so appreciated