 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Dont worry Jo, this thread will not be deleted. Bjmpittsburgh and I discussed the need for this to remain for the newer members.
As in my previous post, this subject is important to us all. The search function (small box near the upper right corner of any page) can bring up many relevant posts you may find interesting. I mentioned the studies as it is so vitally important we all participate to get our combined voices heard. Often caregivers are able to participate with their input as well.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
