Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | This topic has been discussed many times on the OCF forum. Too many patients feel abandoned by their medical team after their treatment ends. An occasional follow up is very much different than seeing your medical team every day. There have also been several studies done on this subject. By participating in these studies, it helps future OC patients to avoid the lack of attention most OC patients feel. Studies can take years before results are tallied, many never even get published.
Recovery from surgery isnt easy. Recovery from rads for most of us was even harder than recovery from surgery. We all know how hard an OC diagnosis is to deal with mentally. When our bodies dont go along with what we expect during the recovery phase, it can make the whole ordeal even harder to manage. We all know the past isnt possible to change. Dwelling on things that are not within our control can make for some pretty miserable patients (some caregivers too). All we can do is look forward and try to do positive things to help ourselves. Some days focusing on the positive isnt an easy task but with practice those dark days will be a rare occasion.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |