Thank you, Christine.

He is being treated at MD Anderson in Houston. They are supposed to be the best in the country. They have been absolutely wonderful! I'm sorry we didn't get him there in June instead of August.

They told him before he started chemo that he was a long way away from clinical trials or experimental treatments. We're waiting for the next consultation later this week to see what the next steps are. He has been adamant about not having a glossectamy. The radiologist is pretty adamant that more radiation, even brachytherapy, is too dangerous for him. So we don't know what is left. More chemo? He tolerated this first round extremely well, with very few side effects and those not very severe. But the tumor characteristics are pretty invasive (it's diffuse, has perineural invasion) and it sounds like the odds of a metastasis are still very high.

We were hoping that he was going to be one of the lucky people who had several years of high quality of life left and now we are not so sure.

I'm very interested in hearing what others on the board have experienced.