Anita,
I have been mentioning the devastating long term effects to every doctor that my husband sees, including his Radiation Oncologist. I want them to be aware of what these patients go through. They say they know, but they don't live with it on a daily basis. Evidently, this is due to more survivors with current tx. options and HPV-positive tumors.

I also have recently noticed less smooth swallowing. Our immediate issue now is early stage ORN.

I am frustrated that there is no longer a team or physician in charge. We are left on our own to figure out what to do and whom to contact.

Lottie