NG tube pain has eased up. And he'll get a new PEG tube in a week - so that's good.
Gloria, what you say hits home. I have seen the swallowing get steadily worse and the aspiration pneumonia come again and again. Have to wonder how many times a body can take it. Even stopping eating and drinking completely may not help - tube feeding puts patients at risk for aspiration pneumonia, too.
I wonder why some patients have such swallowing woes 10 or so years out from radiation and some don't. We have a friend that had his same diagnosis and very similar treatment, but has little or no swallowing difficulty.
I appreciate all the feedback. Thanks.
Anita