I was going to say that it could be beneficial for the patient to attend the tumor board meeting, some cases, maybe not. In my case, if needed, it would have been beneficial due to my age and physical appearance since most say they would never know what I've been through if I never told them just by looking at me, and look strong and healthy. At the same time, I was denied consultation at a top or the top cancer center in the U.S. after they reviewed my records, which was required to be sent even before a consultation date was set. I guess I was too risky/complicated case on paper to become a patient.

I don't ask many questions, go alone, and mostly watch, listen, and don't take notes to cause disruption in the conversation, but may jot down a note or two after I leave. Forget about recording, I wouldn't like it and neither may they, and some may be guarded in their conversation, and not as open as they are. I pretty much know as much as I can before any of my visits, including the doctors background, which is most of the work, have all the material/tests they have, so I may ask for clarification on a point or two, if needed.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs