Hi mark, I know how overwhelming the wait can be. What Cheryld said about cancer starting on one side is true, so you can take relief in that.

And yes Lottie being present when secondary effects cause harm and stress is a daily challenge. I always tell myself that I am doing all that I can by just being at Stephen's side through every storm. We are so accustom to going to the emergency that it has become a calm routine.

I stay calm whenever possible.
Listen and ask how Stephen is doing so that he never feels alone.
And we hold eachother a lot, it makes for better sleeps.
Life is not what I expected but the shared hardship has definitely bonded us in a profound way.
And when he feels better, I make sure to celebrate by being twice as goofy and twice as funny as I usually am. I make him laugh even when he doesn't feel like it and that make me very happy.


husband 61@diagnosis painter
6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis
17/9/13 Dx(moderately aggressive)
24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube
2/01/14 (30 tx)rads 60gy
N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes)
Clear margin, close 2mm inner cheek
15/05/14 cellulitis
3/12/14 Chest CT Clear
27/02/15 cellulitis
8/6/15 cellulitis
10/6/15 Osteomyelitis