Hi KJB - thank you for the feedback. Interesting about the neck and shoulder pain - certainly I've read it can cause problems with hands/feet, circulation and skin issues. I already get neck and shoulder pain from the previous surgery/radiotherapy, so I also happen to know a really good specialist physiotherapist for it - although I no longer live 10 minutes away from her like I used to! But she is right near the actual treatment centre, so I am sure I can combine trips in one way or another.

I am sorry to hear he passed away. I am lucky the team here has kept me alive for 5 years so far, I'm hoping for at least the same again!


6/09 lump undr chin
10/09 SCC R tonsular fossa T4N0M0, spread to tongue
11/09 R tonslctmy, partl glssctmy, nd
2/10 IMRTx30, Cispltnx3
5/10 thrombosis port cath remvd L jugular blckd
1/12 mets R lung, part lung remvd
1/13 mets R lung
2/13 partl lobectmy upper R lobe
12/14 MRI enlrgd nodes meta oesophgs
1/15 DX recur 4cm lymph
2/15 Start 6xCispltn+Erbitx+?