 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I'm glad to hear you have such a crew around you. Your wife sounds like the perfect caregiver. You are one lucky man!
Unfortunately, meds to dry you out will exacerbate the thick goo and cause more of a choking feeling as it slides down the throat and sticks. Make sure you aren't laying flat on your back much as that will cause it to pool up and cut off the airway.
Try to slowly breathe deeply and work through the panic. The excitement in the body while going through that creates so many responses in the body that make breathing a little more difficult. You will gradually develop some strategies that will help you through the roughest times. Breathing through your nose while eating and a few things like that can help prevent inhaling food or drink. It all just takes time.
Hang in there!
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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