I never could get as much as they wanted me too, and in fact I couldn't tolerate the formula very well. We even tried a different kind. I know we all need a certain amount of calories per day, and more to fight off the illness, but I think they sometimes forget to take into account body types and former habits ... I couldn't have taken in that many calories even on a healthy day when I COULD eat whatever I wanted. I am a small eater, and always have been. Forcing my stomach to do more than it actually could ended up harming me badly in the long run.

That said, I did make very sure to stick to a schedule of what I actually could manage, and kept on top of my meds and my hydration. That was the only way to keep sane about the whole thing.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery