 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | It sounds like you two haven't spent much time apart from each other for quite some time. How are you cleaning your mind out?
In some ways, a military man isn't going to take incessant orders from anyone of lesser rank. You can tell him however many ways you want, have others tell him, but you won't get any results. Does he have any friends that could come hang out with him? This is the very worst of times through all this and just having friends around can help a lot.
I'm more concerned with the hygiene issues. If you can smell odors around him, we all know that isn't a good thing. The body isn't in condition to be fighting off new attacks. Bad smell means infection or rotten. Make sure the doctors are aware.
A have you thought of seeing a psychiatric oncologist? You have both been on a continuous spiral down since diagnosis.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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