Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | You sounds like you have done an incredible job being a caregiver to a stubborn patient. At some point, the patient must begin to face facts that they are also responsible for their own well being, not just relying on the caregiver. Since your husband is 3 weeks post rads, he should finally begin to feel slightly better. His intake is what will determine how well he does. If he refuses to follow doctors orders there isnt much you can do. Maybe its time for you to take care of you. Maybe getting some anxiety meds would help you feel a little better about things. Do your very best to stop feeling guilty, sounds to me like you have bent over backwards and done the very best job you could. No guilt when you do your very best, you should not have any regrets for how you managed everything! Please dont apologize for whining!!! We are here for both caregivers and patients alike. I dont consider your post to be selfish or whining at all. Be kind to yourself and make some time to do something you enjoy. It would help to take your mind off everything, maybe go to lunch with a friend or even out for coffee.
Best wishes!
PS... If you ever have issues with user name/password, etc please contact me directly and I will always help. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |