Thanks Christine and Tammy. Your responses alleviate some stress. We had a nurse tell us that she sees this all the time with patients that have been previously radiated. I am hoping we get some clarity as to what is going on soon. I am okay with the debridement surgery for repair if it's going to save the tissue. I just want him to be able to eat an speak soon. He's so anxious to get out of here, but who wouldn't after three weeks!

I wonder how much recovery is delayed by debridement.... Hopefully not much. I will ask about HBO but I believe it's done in individual pods here and he's claustrophobic which may pose a problem.


Caregiver to father
DX:4/14 Surgery:5/14 resection, ND
TX: 33 IMRT complete 9/14
Scan: 10/14, suspicious area tongue & neck.
Biopsy confirmed SCC BOT 2nd Primary, right lateral tongue.
11/14: surgery partial glossectomy, pec flap, trach, NG tube, ND
12/14: debridement surgery, small area removed for clear margins
12/14: biopsy positive for SCC dermal metastasis
1/15: chemo: erbitux, taxol and carboplatin
3/15: 5FU, Erbitux
8/15: enrolled in PD-1 Immunotherapy
9/15: Heaven got a new angel <3