Alpaca, I loved this post from you. Just a genuine reply as to what eating is now like for you. I found it very inspirational and read it out to Kris. He too struggles with fluids dribbling out his mouth and down his chin. Or flying across the room.
I was so proud of him today. We were eating out. Usually he wouldn't have anything, I'd just eat alone. But today he ordered a soup. He couldn't get the spoon far enough into his mouth to deliver the fluid. He was making a " glorious mess". Undeterred I asked the waiter for a cup. We poured the soup into the cup and he managed to drink it without too much more mess. Why was I so thrilled? He ate with me. He also ate "normal" food. So wanting him to say farewell to Fortisip.
Thankyou,
Tammy

Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!