Got really good clear margins on the BOT tumor but unfortunately 9 of the 67 nodes were "affected" and a good number of these also had extracapsular extension.

Originally the plan was just for radiation, but now with this large level of nodal involvement and the extension into the surrounding tissues they're recommending chemo as well. I'm also booked in to have a PET scan next week to double check that the CT and Chest X-Ray are correct in their assumption that there is no further spread elsewhere.

The surgeon told me that it's normal to have 1-2, maybe 3 nodes affected but to have 9 is pretty big, and also to have the surrounding tissues invaded this all now has me worried.

I know that until we have the results I just need to be patient and wait but have any of you had such large nodal involvement or lots of extracapsular involvement - what did it mean for you? Good or bad, I'd like to hear please.

Thanks,
Mel.


39yr old female, DX BOT SCC Stage IVA (T1N2bM0) HPV+
28 May 13 - Pharangoscopy & tongue biopsy
29 May 13 - BOT Surgery & right ND (lvls 2-5)
31 May 13 - Hemorrhage, emergency trach, critical care
BOT clr mgns, 9/67 nodes & extracapsular extension
Finished chemo (cisplatin) & 30 rads