Hi JT,
My husband Kevin had the same dx and has the same hearing loss and taste/dry mouth issues David spoke of. It is getting better by the month.
I don't think any of us has a week (maybe day) that we don't wonder if it will come back. It's not as bad now as it used to be though. My hope is that as we get farther away from it I will think less and less of recurrence. Kevin doesn't talk much about things, but I know he thinks about it too.
We have a PET and scope in October. I'm already nervous about it! We have been through the statistics thing, but really, like others have said, we are all different. David is an inspiration and Kevin and I have decided we will follow in his footsteps!! LOL
Blessings,
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14