Dear Curly,

I'm sorry that you are dealing with this beast yet again, especially having started out so young.

My surgeon told me that "Usually A + B = C, but sometimes A + B = D, and you don't know why.".

That was (and still is) difficult for me to accept. I want to know WHY and HOW I got my cancer, but that's not the way science and medicine always works. Sometimes, it's just the perfect storm and you end up an oral cancer patient, without having any obvious cause.

All of that being said, I am very glad that you found us! I wish you the very best and putting this disease to bed for good! Please keep coming back for support. There are wonderful people here, with a wealth of knowledge, experience, and hope. You can do this! It won't be easy, but it's doable. Life can be good on the other side of treatment.

Take care,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!