Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | So sorry it came back. Your story of recurrence sounds like mine. I also had a clear scan in July of 09 and began to have symptoms in August of 09. Was told in October after biopsy that it was back. Glad you were diligent about seeing the changes. As that is how I knew something was wrong. I still obsess about my mouth and see changes. My ENT is always right on top of it. I pray that it is really early and no other involvement.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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