Will,
Comparatively I didn't have a rough go, although everything sort of crashed around me the last week due to nausea.

My first week after RT wasn't much better than my last, but every week thereafter got a little better.

In just a couple weeks, I was again out and about every morning on a long walk but kept my head and neck covered up from the Sun. It took a month or so for the burn on my neck to heal-up. I think getting out and doing things really helps.

I never had a lot of pain and liquid Tylenol EX normally was OK, but I had plenty of liquid Hydrocodone on hand. I never moved beyond hydrocodone and didn't use much of it.

My biggest problem was getting off the PEG and back to eating. Everything tasted really bad for a couple months and at times that was down right depressing. After getting the PEG out, I had a spell where I sort of lost my appetite so it was starting to be a struggle to keep my weight up.

I remember Thanksgiving dinner was only tolerable, but by Christmas I was eating OK


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11