Hi, I wanted to introduce myself. I am 53, and I am currently dealing with my 3rd bout of a low grade mucoepidermoid carcinoma. In 1997 I had a single lymph node removed, but no primary was ever found. In 2009, the (possible) primary reared its head at base of tongue, also lymph nodes both sides. I had radiation/chemo in 2009, got through that fairly well and fully recovered. Now a recent scan shows activity in lymph nodes, and activity in tongue. I am facing a partial tongue resection and neck dissection, both sides. I am interested in any info on tongue resection and recovery, and also on the robotic surgery option.
Any guidance appreciated.
1997 MEC low grade 1 neck node removed--no primary, stopped monitoring in 2003 (BIG mistake!) 2009 BOT, bilateral lymph IMRT+Cispl 2011 recurrence, hemi-glossectomy, margins clear, reclassified hi-grade 2012 recurrence, total G + laryngectomy, 2013 Mets, now in chemo
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