I am kind of along the same lines with Karen. My doctor never expected mine to come back at all and everything was going good with clear CT's but shortly after the two years mark - it's baaaack. I actually found the spot just having the doctor check on something that was bothering me. They did laser surgery thinking that was it but shortly after laser surgery I found a couple more spots. The interesting thing was the main tumor did not even show up on the PET scan. I think if they had done radiation earlier they would not have gotten it all due to where all the cancer was.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10