Hi Brenda, welcome to the board. My husband was only 37 when diagnosed with Stage IV ssc. His began in his tonsil and spread to neck before we found it. He had never smoked either and only drank a beer or two occasionally. We went to M D Anderson Cancer Center in Houston, TX. It is three years ago this month that he was diagnosed and things are going well now. I am sorry I do not have more information about all that your husband is going through, but just wanted to say that you will find much support and information here. I will keep you both in my prayers. I know how scary it is, especially with young children, we have three.
Julie