Phillipp,

I had exactly the same problem! The docs and the nutritionist had never had a patient with the same problem. And yes, it definitely slowed down my return to 'normal' life and was incredibly frustrating! So, I would just eat what I could, as much as I could until, eventually, it didn't happen any more.

You have to start thinking about eating by mouth as exercise. You don't want to it, you don't like doing it, but you just have to.

Good luck to you.

- Margaret

Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018