Thanks, David and Margaret. I went in today for my radiation treatment, but the RO looked at my mouth first and told me I needed to take three days off. I guess it's as bad as I thought! The underside of my upper lip is one solid blister -- I can't smile anymore, have a hard time drinking (and needless to say, eating). The RO prescribed lidocaine for me (viscous), and I'm going to use it! I tried it before lunch, and was able to eat much more comfortably.

I am still driving myself to treatments (except on chemo days, when I get a ride); if I get to the point where I can't, my fiance will figure out a way to get out of work to do it.

So, three days' respite -- I haven't heard anyone ever talk about their RO giving them time off, but I guess I have to trust mine. I also get the week off from chemo. Maybe my side effects will calm down a little now, and then I can return to the regular routine.

Thanks for all your advice -- I really appreciate it!


Chrissy

Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.