Hello All,
My husband Kyle is currently in his second round of this fight with oral cancer. I want to be prepared if we are told sometime that there is nothing more they can do. We did ask our Dr. about clinic trials and he suggested we research Memorial Sloan, MD Anderson and John Hopkins. He said most clinic trials do not work but it�s something to try if we get to that point.
When is this cancer so far that they can�t do anymore? Are there any medications or procedures being done in other countries that aren�t approved yet in the U.S.? I want to research and be prepared with a �plan C� if need be. I have read past comments on this board regarding homeopathic remedies so I hate to even ask but I will. Any luck with anything? My husband turned 43 last week and we have a 2 and 3 year old. He is going to fight this as long as possible. Any advice would be greatly appreciated.
Sincerely, Tamara

03/07 - tongue tumor removed, chemo/rad � lymph nodes clear
06/08 � part of tongue, base of mouth, left jaw, muscle/skin left neck area removed, 2 of 12 lymph nodes positive.
Radiation/chemo � may start 1-2 weeks (see Dr. tomorrow)

Tamara:

Welcome to OCF. You will find many caring, knowledgeable people here that will help you thru this hard time. Im sorry your husband is going thru this again.

I dont have answers to your questions about alternative cures. I have only been treated with chemo/rad/surgery for my 2 rounds of OC.

Good luck with your appointment tomorrow.

Christine

I agree that contacting the major NCI cancer centers will give you valuable info. Each as a clinical trials coordinator, and each has access to different trials. On the "Other Resources" link from the main entry OCF site page, there is a clinical trials search engine link that will take you to the main government site for locating trials. http://www.oralcancerfoundation.org/resources/index.htm#clinical It is a long process to sort though all the possibilities that it finds, most any given patient (because of their unique needs) will not qualify for, but I wanted you to know that resource was there. Remember that clinical trials are closed to many people that do not fit into the very specific parameters of that trial. For instance, they may only want people of a certain age, a certain staging, that have had one treatment like radiation but not another. It can get a bit frustrating, so the trail coordinators are a good first start. Let's hope that things do not go this far.

Tamara,

You are to be commended for being so diligent and your husband is blessed to have you in his team. Don't give up.

Tamara, Good luck with finding a clinical trial but I also hope that things don't go that far and his current treatment is the end of it.

Nelie

I was in a trail at Ohio State Cancer center, but had to drop out . I haven't been back there since I had rads , chemo, and implants in this area at a comp. camcer center. I hope the study was successful.