#53565 06-12-2004 06:15 AM | Joined: May 2004 Posts: 80 Senior Member (75+ posts) | OP  Senior Member (75+ posts)
Joined: May 2004 Posts: 80 | follow up to earlier thread about nutrition, here's a comprehensive and well-researched article that pulls together findings from different studies. it's well worth reading. (link removed by OCF)
be well.
gita
sister diagnosed 11/03 SCC maxilla keratenizing stg IV T1N1Mx; 4-7 positive lymph nodes; dissection 12/03 left upper pallette removd; radiaton left side 35 sessions 2/04-4/04; recurrence same side 4/04; chemo began 5/04 incl cisplatine, 5fu, taxotere
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#53566 06-13-2004 01:26 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Good info, but exhausting to think through... and I could find other articles that contradict different parts of this... sigh...
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#53567 06-13-2004 01:40 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | I agree with Eric...seems so exhausting and confusing to figure out what is really good to eat or drink...so much even about water and fluoride, etc. And then for those like Helen who was a total veggie, didn't keep her from getting cancer...wow, so hard!!
Thanks, Gita, for sending the site for information!
Take care and God bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#53568 06-13-2004 05:57 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I, too, agree that it is very difficult to find what will work while you sift through the myriad options people direct you to. Keep in mind, the basic (or newly revised, I should say) food pyramid as a guide. Another important thing to remember is that while you are going through chemo and/or radiation, radical changes in diet are a shock to your digestive system and entire body, for that matter. A comprehensive change from a carnivorous diet to pure vegan diet would take many months for a healthy person and would most likely not be beneficial to someone going through chemo and/or radiation until many months after treatmnent. A very important part of radical dietary change is to detox first and then gradually work in the new diet. Detoxing while undergoing chemo and/or radiation is not going to be a good thing as is heavy detoxing while active cancer is in your body. Refined sugar intake with active cancer is also not good. Get your sugar from fruits as much as possible until your body is somewhat cancer free.
Take regular mutlivitamins. Sublingual B-12 will help your damaged digestive tract absorb and use protein versus just pushing it through.
Beyond this basic information, always consult with a dietician/nutritionist and your medical oncologist on all diets and changes in diets.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#53569 06-14-2004 01:40 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | For a number of years now, in addition to daily multivitamins, my oncologist has had me taking Vitamin C (500 mg/day) and Vitamin E (400 IU/day). I know there's a lot of controversy over whether Vitamin C supplements help to ward off colds, but in my case during the years I've been taking them, I've had almost no colds.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#53570 06-14-2004 01:59 AM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Cathy, like you I have been taking Vitamin C (500 mg/day) for about a year and I am usually the last one to catch a cold in my family when the weather changes (knock on the wood).Even if I have a cold, I can recover pretty soon as compared with others. Again I am not sure if it is the Vitamin C that helps me or that my immune system has been strengthed through healthy diet and exercises.I don't take other types of Vitamin and I don't eat too much fruit because it doesn't taste good to me. But I have a tomato as my breakfast every morning.
Karen.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#53571 06-14-2004 02:47 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Cathy/Karen, I have never taken Vitamin C supplements and on the average, I get a cold about once every three years. I can be around a houseful of people with colds and they just affect me once in a while. The last one was November 2002 and I had a temporary office in the hallway facing the north and it was 10 degrees (f) below zero with the wind howling in on my all day. I took some zinc lozenges and it cleared up in 2 days. I guess I am just fortunate.  Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#53572 06-14-2004 11:51 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Please note that OCF has chosen to remove the link in the first post of this thread. First, if you read and agreed to our rules of use of the message board, they require any links related to treatments, nutrition etc. to be approved by the staff of OCF prior to posting. Second, while the recommended site has some good information
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#53573 06-15-2004 04:59 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I received a couple of emails about all this, pro and con, from the informed and the less informed, from
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#53574 06-15-2004 10:28 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Based on the research I've done, here's what I do:
...first, anyone currently in treatment should talk to their doc about taking supplements. It's possible they could interfere with treatment. For instance, both chemo and radiation rely, at least partially, on the use of oxidants to kill the cancer cells. The use of anti-oxidants could cause problems. In my case during treatment, the nutritionist would only sign off on a multi-vitamin that contains no more than 100% of the RDA.
OK, here's what I take:
Every morning and evening
-------------------------
500mg ethster C
160mg echanasia
250mg ginseng
...in addition...
Every morning
-------------
200 IU vitamin E
200mg folic acid
Every evening
-------------
multi-vitamin (Theragan M)
3mg garlic oil
Every Monday, Wednesday, Friday morning
(this is in addtion to the other morning supplements)
-----------------------------------------
25000 IU vitamin A as beta carotine
400mg selenium
200mcg chromium
One day or two out of every couple of weeks, I won't take any supplements to give my body a break.
Why only three days a week for some of these? Vitamin A and selenium can be toxic because they accumulate in the body. I don't want to make myself sick when I'm trying to do exactly the opposite. No matter what, I don't want to over do it. The body does need some oxidation. So I'm not "mega dosing," but I want to make sure my immune system is as strong as I can nutritionally make it.
...anyway...it seems to work for me. (knock on wood)
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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