#50951 10-02-2004 08:56 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) |  Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Oh DJS, please don't beat yourself up about this. I am so sorry to hear about Smitty's relapse and so sorry for all that you will be going through. Know that you are with "family" here and we are great listeners.
Love and God bless,
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#50952 10-02-2004 09:35 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi DJS
No-one can do it all, my husband is in remission for advanced prostate cancer and I'm now recovering from surgery for oral cancer, I know that many of my questions are unanswered because I cannot be all things to both of us,all I can do is my best, but YES I have to trust that the doctors do their best also, and I have to believe that this is what they try to do. So if God is on OUR side we have to win through, as Judy says, we are all "family" here, so stay with us...
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#50953 10-02-2004 12:10 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello DJS,
I am so sorry to hear the news about Smitty's
mestastatic cancer. Please know you have all the love and support you can take from this forum.
Please keep us posted on how things are going.
Many a doctor has been wrong about this before.
Best Wishes for both of you,
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#50954 10-02-2004 06:39 PM | Joined: Oct 2003 Posts: 89 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2003 Posts: 89 | Scared, angry and incredibly saddened, no wonder. This is a horrible thing. To go from suddenly seeming ok, with no apparent warning, to having the whole earth drop out from under you. I can't describe it. I am touched and feel pain for the 2 of you, yet know that my feelings are not at all what you must be going through. I wish I could find words.
The rambling, unpredictable nature of this cancer is part of what makes it so scarey. It is hard to say at what point the cancer suddenly grew and blossomed. Feeling powerless to the disease, I see the need to question what could we have done differently, should we have pressed for more tests, etc. But the evidence seems to show that the cancer CAN come back and rear its ugly fangs rapidly and unpredictably. It is the fear we at this site live with and dread.
I know many people who have had strentgh and supportive services from their local hospice center to help deal with the issues you must be dealing with now.
Wishing you peace and strength,
michelle
History of leukoplakia <2001-2004. SCC lateral tongue 9/03; left radical neck dissection & hemiglosectomy 10/03, T2-3,N0M0; 28 IMRT radiation completed 12/03. 30 HBO dives Oct-Nov 04 for infections and bone necrosis -mandible.
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